phil, I stumbled across this
philf wrote:My "GF" has Multiple Sclerosis, and it was this that brought me to e-biking. By motorizing her ride, I was able to do what I enjoyed and not have to leave her behind... The problem, though, was that she was leaving ME behind... So I got hooked, too.
I have a friend who was diagnosed with MS some 20 years ago. I hadn't seen her for a long time then recently crossed paths, she told me that for all intents and purposes she is cured! Well not totally cured, but she is no longer in a wheelchair. They had a wheelchair lift but got rid of it, because she's walking! She rides on a tandem bicycle too. She is still on medications and isn't 100% recovered but she is doing very well. So one thing is for sure: there is always hope. Best wishes to you and your GF.
Hey! Just caught this. Thanks! Actually, the latest meds have really been producing positive results (Rebif). It's taken a while to feel out whether there was any conclusive evidence to suggest that these (expensive) meds actually *DO* anything, but judging from the community of people she's a part of that compare notes regularly, I think there's something good going on.
Alison isn't currently anywhere close to the level of debilitation that many with MS suffer, though there have been a few particular episodes that were pretty scary. Right now, she's pretty close to "normal" (whatever that means), even if she is de-conditioned a bit.
There are some people that we've found online, though, that have MUCH more going on with respect to MS (very progressive), and yet who are really inspiring. And there's a connection to the whole EV thing...
I give you Marc, the Wheelchair Kamikaze...http://www.wheelchairkamikaze.com/
Check out his videos. Marc's a sharp guy whose career was buggered up unfairly, and yet he remains remarkably up-beat, and offers himself up for any kind of scientific experiment which might help himself or others. The flavour of MS that he has is of the more progressive kind. When I look at his Wheelchair Kamikaze videos, though, I just get this hankering to go to New York and pimp his ride, if you know what I mean
Apologies - didn't mean to hijack the sharing of demographics - if we want to get going on the subject of wheelchair hyper-drive, I should start a new thread.
(No actual edits - IE8 sucks).